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Supporting those affected by Niemann-Pick diseases

NPUK 24th Annual Family Conference & Interactive Workshop

Our 24th Annual Family Conference will be held from the 22nd to the 24th of September 2017, in the beautiful Mecure Haydock Hotel - book your place now!

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Latest news

03.08.16

NP-C Quality of Life Questionnaire – Can you Help?

You may recall that Niemann-Pick UK has been supporting Aston University in their work to deliver a research study titled “Development of health-related quality of life scales for patients and parents affected by Niemann-Pick Disease Type C”, which aims to bring benefits for the NP-C community.

This study has ethical and R&D approvals through the appropriate UK academic channels and in order to make further progress, research student Lydia needs your help.

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03.08.16

An Exciting Announcement from Vtesse

Vtesse have announced an agreement to be acquired by Sucampo Pharmaceuticals—a global biopharmaceutical company that, like Vtesse, is focused on pursuing scientific innovation with a passion for improving the lives of patients.

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