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Supporting those affected by Niemann-Pick diseases

NPUK 25th Annual Family Conference & Interactive Workshop

Our 25th Annual Family Conference will be held next September at Wyboston Lakes, please get in touch with us at for further details

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Latest news


CTD Holdings Receives Rare Pediatric Disease Designation for Trappsol® Cyclo™

CTD Holdings, Inc. today announced that it has received rare pediatric disease designation from the FDA for its Trappsol® Cyclo™ drug...

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Orphazyme’s CEO, Anders Hinsby: Letter to NP-C Community

A letter to the NPC community from Orphazyme’s CEO, Anders Hinsby. We are please to also provide translations (from English into German, French, Spanish, Italian, Polish) of this letter.

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