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Supporting those affected by Niemann-Pick diseases

NPUK 23rd Annual Family Conference

The NPUK 23rd Annual Family Conference took place 16-18th September 2016 at Wyboston Lakes

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Vtesse January 2017 Newsletter: Update on the Clinical Trial of VTS-270: The NPC Study

On 28 February 2017, the tenth edition of Rare Disease Day will see thousands of people from all over the world come together to advocate for more research on rare diseases. Over the last few decades, funds dedicated to rare disease research have increased. But it can’t stop there.

Rare Disease Day 2017 is therefore an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research and to make them aware of the importance of research for the rare disease community.

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Happy 2nd Birthday, Aparito!

Niemann-Pick UK and the International Niemann Pick Disease Alliance would like to congratulate Aparito on celebrating two successful years of working in partnership with patient organisations, hospitals and research institutions across the World!

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