Thank you for donating!

You can donate using the following services.

Supporting those affected by Niemann-Pick diseases

NPUK 24th Annual Family Conference & Interactive Workshop

Our 24th Annual Family Conference will be held from the 22nd to the 24th of September 2017, in the beautiful Mercure Haydock Hotel - book your place now!

Explore NPUK

View all

Latest news

03.08.16

Route of Administration Preferences Study

There is an opportunity for you to participate in a market research study about Niemann-Pick Type C, conducted by an organization called ApotheCom on behalf of an industry sponsor.

The goal of the study is to understand your preferences and concerns regarding the method through which a drug could be administered to manage Niemann-Pick Type C.

Read more

03.08.16

NP-C Patient Flow Study 2017

We are pleased to inform you about an opportunity to share your story of living with Niemann-Pick Type C (NPC) in a market research study.

An independent market research organisation, Magnolia Innovation, is currently conducting research with people, or parents of children, who have NP-C.

The goal of the research is to understand the challenges of diagnosis, care and everyday activities of living with NPC. Magnolia would be very grateful to hear your stories and experiences in a one-hour phone interview to understand more about this condition.

Read more
View all news Subscribe