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About Us

Niemann-Pick UK (NPUK) is a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. We raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies.

We are a small charity with less than five hundred members, the work we do is funded entirely through fundraising activities and successful grant applications. Our strength, therefore, comes from the dedication of our much valued families, members, benefactors and volunteers who work with tremendous effort and loyalty in support of the charity.

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Latest news

16.02.18

IMPORTANT: The Data Protection Law is Changing!

Due to changes in data protection legislation, soon NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent.

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01.02.18

NPUK News: Winter 2018 Issue

The NPUK News Winter 2018 Issue is now available, featuring research and clinical trial updates, fundraising news, and much much more...

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