NPUK is governed by its Articles and Memorandum and run by a Board of Trustees.
Our Annual Reports review our performance each year and the progress we’re making against our aims and objectives.
Our Report and Financial Statements provide a financial review each year.
06.03.24
Yesterday, we were greatly disappointed to learn that the UK's National Institute for Health and Care Excellence (NICE) has decided not to recommend Sanofi's Xenpozyme (olipudase alfa) as a treatment for acid sphingomyelinase deficiency (ASMD; Niemann-Pick Disease) in people with type AB or type B...
Read more