Last year was my first inkling of a ‘family’ out there who had an understanding of some of my life’s struggles. Those of you who met me will remember the EXTREME emotion I exhibited. I was completely overwhelmed but felt incredibly supported by all (and even that was overwhelming!) I felt enclosed by a big, warm blanket of supportive deliciousness! It was also fantastic to hear stories which echoed my own experiences, and to see little folk who reminded me so much of my younger years. The experience was invaluable.
I was unable to attend this year because I’m embarking on the “Olipiudase Alfa” screening process. Unsure as yet whether I will qualify – the regime appears somewhat daunting and runs for a significant period of time. As I’ve managed to live these 63 years (albeit with many struggles) I don’t think I’d normally bother. However as they need as many people as possible in the trial, I remember those aforementioned little ones and feel that anything I can do to help may be useful.
So folks – I’m already very regretful that I wasn’t there, but I hope you all had an amazing time together, gleaning ever more information and support.
Thanks again for being there for me last year. I’ll never forget it – perhaps next year.
Love and hugs to all… Sandy xxxx
For further info please contact the NPUK Central Office by either email at: info@npuk.org, or by telephone on: 0191 415 0693.
We hope to see you all in September!
