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Without people like you getting involved, we wouldn't be able to provide the care and support that we provide to families affected by Niemann-Pick disease. There are numerous opportunities available when it comes to helping us, everything from taking part in our fun days as a member of our passionate volunteer team, setting up fundraisers, or drumming up interest and donations through creative sponsored events. By working together we can make a real difference to the lives of those people affected by Niemann-Pick disease. Contact us if you would like to know more.

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Latest news

25.08.16

NP-C Quality of Life Questionnaire – Can you Help?

You may recall that Niemann-Pick UK has been supporting Aston University in their work to deliver a research study titled “Development of health-related quality of life scales for patients and parents affected by Niemann-Pick Disease Type C”, which aims to bring benefits for the NP-C community.

This study has ethical and R&D approvals through the appropriate UK academic channels and in order to make further progress, research student Lydia needs your help.

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25.08.16

An Exciting Announcement from Vtesse

Vtesse have announced an agreement to be acquired by Sucampo Pharmaceuticals—a global biopharmaceutical company that, like Vtesse, is focused on pursuing scientific innovation with a passion for improving the lives of patients.

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