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NPUK News: Summer 2018

Posted: 30.05.18

We are happy to announce that the latest edition of NPUK News is here…and, as ever, is full to the brim of information and updates for the NPUK community including; the ‘Research Report’ by NPUK Trustee Bill Owen, updates from our wonderful Care and Support team (Laura Bell, Elizabeth Davenport, and Steve Neal), a collection of stories from our fantastic fundraisers, news on our upcoming Annual Family Conference & Interactive Workshop, updates from the INPDA International Niemann-Pick Disease Alliance, INPDR International Niemann-Pick Disease Registry, The Hollie Foundation and…well…so much more!

View below, and download in full here

At NPUK we are a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. Our central goals are to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies for NPD.

To learn more about Niemann-Pick disease, please visit: http://www.npuk.org/niemann-pick-disease/