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We aim to provide up-to-date, comprehensive and practical information and advice for those affected by Niemann-Pick diseases as well as information and resources specifically for health, education and social care professionals. The information we develop covers a broad range of topics to enable you to tailor information for your needs. Please feel free to share any of the resources available. If you have any questions or need further information then please contact us at any time.

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Latest news

16.02.18

IMPORTANT: The Data Protection Law is Changing!

Due to changes in data protection legislation, soon NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent.

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01.02.18

NPUK News: Winter 2018 Issue

The NPUK News Winter 2018 Issue is now available, featuring research and clinical trial updates, fundraising news, and much much more...

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