Thank you for donating!

You can donate using the following services.

25th NPUK Annual Family Conference 2018

Registration Form - Families & Friends

If you have any questions or if you require further information about the Conference, please contact the NPUK team.

  • Conference dates: 21st- 23rd September 2018
  • Venue: The Executive Centre, Wyboston Lakes, Great North Road,
    Wyboston, Bedfordshire, MK44 3AL

Main contact:

Delegate information (for everyone in your party):

To add more delegates, select 'Add New' below

Contact preferences:

We would like to keep you up to date with NPUK news, events and activities, but only with your permission! If you’re happy with this please tell us how you would like to be contacted by ticking all the relevant boxes below:

To change these options at any time call us on 0191 4150693 or email info@npuk.org

Your Details Are Safe With Us:

The information collected on this form will be stored securely and only be used to provide the service(s) that you have requested and communicate with you in the way(s) you have agreed to. Your details may also be used for analysis purposes, to help us provide the best possible service. We will not share your details with any third party unless required to do so by law.

The Conference Venue

The Conference will take place at the Executive Centre, Wyboston Lakes, Great North Road, Wyboston, Bedfordshire, MK44 3AL; for Further information visit www.wybostonlakes.co.uk

Thanks to the generosity of our grant funders and sponsors for this event, we are able to substantially subsidise conference fees and accommodation costs for affected families and individuals wishing to attend this event.

You can choose either the Residential OR Non-Residential Option.

Residential options:

What's included?

  • Conference fees
  • Accommodation and dinner on Friday 20th and Saturday 21st September
  • Breakfast, refreshments and buffet lunch on Saturday 21st and Sunday 22nd September
  • Access to the Children and Young Persons’ Activity Programme (if required)

Please note:

The Executive Centre is a dedicated Conference Facility, with limited Family Rooms. Concessions are available for families needing more than one bedroom, please contact our staff team for further information.

 

Price per room

Friday 20th September

Saturday 21st September

Sub-total:

Single occupancy room

Price per person

£85

Friday 20th September

Saturday 21st September

Sub-total:

£

Twin room
Max. 2 adults with room for a cot or z-bed

Price per person

£95

Friday 20th September

Saturday 21st September

Sub-total:

£

Double room
Max. 2 adults with room for a cot or z-bed

Price per person

£95

Friday 20th September

Saturday 21st September

Sub-total:

£

Family Room
Max. 2 Adults a cot and a z-bed

Price per person

£95

Friday 20th September

Saturday 21st September

Sub-total:

£

Accessible room
Easy-access bathroom, emergency cord and appropriate fittings (limited availability).

Price per room, per person

£95

Friday 20th September

Saturday 21st September

Sub-total:

£

Non-residential options:

 

Price per person

 

Sub-total:

Saturday conference plus lunch

Price per person

£30

 

Sub-total:

£

Saturday conference plus lunch and dinner

Price per person

£50

 

Sub-total:

£

Sunday conference with lunch

Price per person

£20

 

Sub-total:

£

Children and young adults' activity programme

An activity programme for children and young adults will run alongside the main Conference programme.

The Programme is free of charge and delivered by a team of trained volunteers. This year, participants will visit Wicksteed Park (www.wicksteedpark.org) on Saturday 21st September and enjoy on-site activities on Sunday 22nd September.

Saturday 21st September 8.45 - 17.00 (Wicksteed Park)


Sunday 22nd September 9:30 - 13:00 (on-site activities)


Payment

Limited funds are available to support those who may need assistance to attend this event. For further information, please contact a member of the NPUK Staff Team (details below), all applications will be treated in confidence.

Total to pay:

£

Pay by cheque

Please make cheques payable to 'NPUK', address: Suite 2, Vermont House, Concord, Washington, NE37 2SQ

Pay by BACS transfer

Transfer to: Account Number 31660187 Sort code: 40-22-21

Pay online

Please visit our fundraising page on MyDonateBT.com: www.mydonate.bt.com/charities/niemann-pickuk. Click ‘Donate Now’ and use the reference ‘AFC 2018’ to help us trace your payment

Please note:

All accommodation charges must be settled in full on or before Sunday 22nd September 2019. It is the sole responsibility of the individual delegate to settle in full, prior to departure, additional extras charged to your room during the course of the weekend, unless previously agreed.

Please help us to help you! We are a small team, the sooner we receive your booking, the better we can meet your needs!

Conference registration deadline: Friday 6th September 2019 - we will not be able to take bookings after this date.

Latest news

11.06.19

Orphazyme to prepare for filing of arimoclomol in Europe for Niemann-Pick disease Type C (NPC)

Orphazyme plans to meet with the US Food and Drug Administration (FDA) to discuss the pathway forward during the Summer and will provide an update after it has received written comments from the FDA...

Read more

03.06.19

CTD Holdings Closes $7.4 Million Private Placement

CTD Holdings, Inc. (OTCQB: CTDH)("CTD" or the "Company"), a clinical stage biotechnology company that develops cyclodextrin-based products for the treatment of disease with unmet medical need, today announced that it closed its previously announced private placement of securities with a group of institutional and accredited investors that included directors and officers of the Company.

Read more
View all news Subscribe