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Are you looking forward to the NPUK Annual Family Conference?

Posted: 11.07.18

Our Annual Family Conference and Interactive Workshop on Niemann-Pick Diseases brings together affected individuals, families, health and research professionals under one roof.

This year we will return to Wyboston Lakes, Bedfordshire, over the weekend of 20th-22nd September 2019, to celebrate our 26th Conference! Wyboston Lakes is one of our favourite locations, with many memories made over the years, and we look forward to welcoming friends old and new, those newly diagnosed, living with Niemann-Pick or those that have experienced bereavement.

The Conference will once again offer the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick disease type C, plus related care issues, breakout sessions and workshops.

The Interactive Workshop on Niemann-Pick Diseases, an event for professional delegates only, will take place on Friday 20th September.

Hosted by Professor Fran Platt, University of Oxford, the meeting will feature clinical and scientific presentations and workshops on relevant topics, including clinical management, research and potential therapies. This special weekend is about sharing information, meeting new people and getting together with friends.

As we look back on 26 years of our Annual Family Conference, we remember those that are no longer with us, who will forever remain in our hearts, we consider the positive steps made in this time and the progress yet to be made. Now we are looking to the future, and to the achievements and challenges yet to come. We have great hope for the next 26 years, in the knowledge that we are in this together, and that we are stronger, together.

If you would like to join us this year please fill out our online form(s): family delegates click here, professional delegates click here. For further information please contact NPUK by email at:, or by phone on: 0191 415 0693.