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NPUK Series: Invisible Interviews

Invisible Interviews is a documentary short film series that follows four families affected by Niemann- Pick disease, providing a deeper and more personal insight into some of the issues and challenges highlighted in our short film Invisible Manners. The first interview with community member Graham Kirk (NPC) is available to watch via our Facebook page and YouTube now.


NPUK Support Fund

The NPUK Support Fund is still in place to help individuals and families within the NPUK Community. The aim of this limited fund is to assist those experiencing hardship or unexpected expense as a result of the Coronavirus pandemic, which threatens to impact their physical or mental well-being. Find out more information at:

NPUK, Annual Family Conference, 30

Celebrating 30 Years!

Last year we celebrated 30 years as an organisation - that's 30 years of developing awareness surrounding this rare but devastating group of genetic conditions…thirty years of pushing for research, clinical trials, and scientific progress…thirty years of care and support for individuals and families affected by Niemann-Pick diseases – thirty years of you, the NPUK Family!

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IntraBio Ltd: Nov 301 NPC UK Recruitment Update

IntraBio Ltd. is pleased to share that the Phase III pivotal trial with N-acetyl-L-leucine (IB1001-301) clinical trial has enrolled over 70% of the target number of patients in the second month of recruitment...

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