The Invisible Interviews project is our new documentary film series, which features interviews and stories with members of our wider community, all of whom starred in last year’s short film Invisible Manners. We are thrilled to share that the first interview in the campaign is available to view, a short interview with
Graham Kirk, at his home in Rush just outside of Dublin. In this interview, Graham shared how a diagnosis of NPC has impacted his own life, shared stories and memories of his sister Paula (NPC), and how her sad passing in 2012, aged 30, affected their family, and the way in which they continue to keep her memory alive. During the interview, Graham showed us some brilliant childhood snaps of his family friends, as well as memories of his wedding and marriage to his wife Ciara. Throughout the whole interview, Graham was honest, thoughtful, and entertaining, and we are so pleased with the finished cut.
We shared a rough draft of Graham’s interview during our Annual Family Conference and Interactive Workshop in October, and we were so encouraged by the positive reaction to the short interview. This personal way of exploring the disease seemed to really convey how behind any rare disease, is a person with memories and experiences as well as love and loss, and we look forward to sharing the rest of the interviews with you all, which we hope illustrates how no experience with Niemann-Pick diseases is the same.
Graham’s story was released via social media on the 10th of November, and we are so pleased that already Graham’s story has received positive traction on social media. At the time of writing, it has amassed 1,200 views in the first four days, and we hope it continues to grow in numbers ensuring that we reach audiences beyond our own community. Graham has rightly received lots of warm and empathetic reactions from friends, family members, and colleagues too.
Toni Mathieson, Niemann-Pick UK, Chief Executive shared: “…Graham is such an incredible advocate for those affected by Niemann-Pick, and a great example of the strength we have within our community. Please do share with others if this piece has touched you – awareness is key and we
need your help…”
NPUK is so thrilled to share Invisible Interviews with our community! You can watch the first interview with Graham Kirk here. Please get behind our latest campaign, by sharing this interview, and our future posts, with others – as always, YOUR support is what makes the greatest impact with such campaigns. Thank you!