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Digital Annual Family Conference: Zoom Sessions Schedule!

Posted: 25.09.20

Here at NPUK we are really excited for the launch of our Digital Annual Family Conference which begins this evening (25th September). Starting our Conference off with a bang is our “Getting to Know You” sessions, which are taking place over Zoom. These sessions are an informal opportunity to say hello, interact with other family delegates and meet NPUK staff members and Trustees.  Throughout the Conference weekend there are several Zoom sessions taking place that you and your family might find useful/fun. We really hope to see you at one (or more) of these sessions…

In this blog post we have outlined all of our fantastic sessions taking place on Zoom over the Conference weekend. All you have to do is select the session that you prefer, click the link to the meeting and join in the fun!

Friday 25th of September:

Session: Adults Living with NPC

Hosts: Laura Bell (NPUK Clinical Nurse Specialist) and Louise Metcalfe (NPUK Volunteer)

Time: 19:00 – 20:00

Join Zoom Meeting:


Session: Lads, Dads and Carers

Hosts: Will Evans (NP-C Dad & NPUK Trustee) and Steve Neal (NPUK Project Families Officer)

Time: 19:00 – 20:00

Join Zoom Meeting:


Session: NP-C Mums and Carers

Hosts: Helen Carter (NP-C Mum & NPUK Trustee), Fiona Dunne (NP-C Mum & NPUK Trustee) and Karen Thomas (NPUK Families Officer)

Time: 20:00 -21.00

Join Zoom Meeting:


Session: ASMD NP types A&B Families and Friends

Hosts: Sandy Cowie (ASMD NP-B) and Janice Brooks (ASMD NP-B Grandmother/NPUK Trustee)

Time: 20:00 – 21:00

Join Zoom Meeting:

Saturday 26th of September:

Topic: Beth’s Baffling Brain Teaser

A fun Kids Quiz hosted by NPUK volunteers Beth Scowcroft, Jan Patterson and Katie Reynolds

Time: 18.15 -19:00

Join Zoom Meeting:


Topic: The Colwell Quiz

Join NP-C dad Terry Colwell for another round of his popular quiz – get those brain cells working!

Time: 20:00 -21:30

Join Zoom Meeting:

Sunday 27th of September:

Topic: Easy Like Sunday Morning

Bring your cuppa for an informal chat with NPUK trustee, Janice Brooks and NPUK Team members Karen Thomas & Christine Jopling

Time: 10.15 -11:30

Join Zoom Meeting:


Topic: Dealing with Anxiety

Learn some helpful stress and anxiety management techniques with NPUK Project Families Officer Steve Neal & Counsellor Tony Somers

Time: 10.15 – 11:30

Join Zoom Meeting:


Topic: NPUK Youth Council Meeting

Time: 14:00 – 15:00


Join Zoom Meeting

If you are having difficulty accessing the Zoom sessions, or if at any time during the Digital Annual Family Conference you require assistance, please get in touch with the NPUK team for help and support.  Email or contact one of the team directly with any queries/questions and we will do our very best to assist you.