Here at NPUK we are really excited for the launch of our Digital Annual Family Conference which begins this evening (25th September). Starting our Conference off with a bang is our “Getting to Know You” sessions, which are taking place over Zoom. These sessions are an informal opportunity to say hello, interact with other family delegates and meet NPUK staff members and Trustees. Throughout the Conference weekend there are several Zoom sessions taking place that you and your family might find useful/fun. We really hope to see you at one (or more) of these sessions…
In this blog post we have outlined all of our fantastic sessions taking place on Zoom over the Conference weekend. All you have to do is select the session that you prefer, click the link to the meeting and join in the fun!
Friday 25th of September:
Session: Adults Living with NPC
Hosts: Laura Bell (NPUK Clinical Nurse Specialist) and Louise Metcalfe (NPUK Volunteer)
Time: 19:00 – 20:00
Join Zoom Meeting: https://us02web.zoom.us/j/88228128490
Session: Lads, Dads and Carers
Hosts: Will Evans (NP-C Dad & NPUK Trustee) and Steve Neal (NPUK Project Families Officer)
Time: 19:00 – 20:00
Join Zoom Meeting: https://us02web.zoom.us/j/88277376801
Session: NP-C Mums and Carers
Hosts: Helen Carter (NP-C Mum & NPUK Trustee), Fiona Dunne (NP-C Mum & NPUK Trustee) and Karen Thomas (NPUK Families Officer)
Time: 20:00 -21.00
Join Zoom Meeting: https://us02web.zoom.us/j/88356889342
Session: ASMD NP types A&B Families and Friends
Hosts: Sandy Cowie (ASMD NP-B) and Janice Brooks (ASMD NP-B Grandmother/NPUK Trustee)
Time: 20:00 – 21:00
Join Zoom Meeting: https://us02web.zoom.us/j/81225881835
Saturday 26th of September:
Topic: Beth’s Baffling Brain Teaser
A fun Kids Quiz hosted by NPUK volunteers Beth Scowcroft, Jan Patterson and Katie Reynolds
Time: 18.15 -19:00
Join Zoom Meeting: https://us02web.zoom.us/j/88665444334
Topic: The Colwell Quiz
Join NP-C dad Terry Colwell for another round of his popular quiz – get those brain cells working!
Time: 20:00 -21:30
Join Zoom Meeting: https://us02web.zoom.us/j/81700152115
Sunday 27th of September:
Topic: Easy Like Sunday Morning
Bring your cuppa for an informal chat with NPUK trustee, Janice Brooks and NPUK Team members Karen Thomas & Christine Jopling
Time: 10.15 -11:30
Join Zoom Meeting: https://us02web.zoom.us/j/81318880363
Topic: Dealing with Anxiety
Learn some helpful stress and anxiety management techniques with NPUK Project Families Officer Steve Neal & Counsellor Tony Somers
Time: 10.15 – 11:30
Join Zoom Meeting: https://us02web.zoom.us/j/83067983819
Topic: NPUK Youth Council Meeting
Time: 14:00 – 15:00
Join Zoom Meeting
If you are having difficulty accessing the Zoom sessions, or if at any time during the Digital Annual Family Conference you require assistance, please get in touch with the NPUK team for help and support. Email info@npuk.org or contact one of the team directly with any queries/questions and we will do our very best to assist you.