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Reasons to Attend the 2020 Digital Annual Family Conference & Interactive Workshop: RESEARCH

Posted: 21.09.20

We are so excited for our upcoming Digital Annual Family Conference & Interactive Workshop, which this year takes place on the 25th-27th September. There are so many reasons to attend this year’s digital event – more than ever “research” has been central to our upcoming Digital Conference scheduling.

Our Conference is always so important for shaping the research around Niemann- Pick Disease for the oncoming year through interaction between medical professionals and families. Although this year’s Annual Conference & Interactive Workshop is going Digital- it is still the ideal opportunity to provide an overview on all the research currently taking place.

For the medical professionals attending the Conference, one of the main benefits of meeting with individuals and families within the Niemann-Pick Community is that this interaction provides a much deeper appreciation of how the disease can affect a patient and their family. Although our medical professionals have an in depth scientific knowledge of the various aspects of Niemann-Pick Disease, this person to person interaction is still so vital as it illustrates the various effects of the disease one would not necessarily understand without having witnessed or heard about it first-hand. This knowledge and understanding garnered from Conferences in the past has had a huge impact on the research taking place via the direction of medical professionals.

As Professor Fran Platt (Professor of Biochemistry and Pharmacology, University of Oxford) shared: “As a scientist it is incredibly important to stay connected to the disease you work with”. Hence, one of our fears when creating a Digital event was that the human interaction that is so central to our event would be lost on an online platform. However, after getting to grips will all the new tech, we believe we have created a programme that will still encourage interaction and networking between the various individuals within our community and provides the environment of collaboration that is so necessary for future research to continue to take place. Throughout the Conference weekend we have scheduled numerous presentations, research updates and networking opportunities that we believe will continue to bring together our medical professionals and NPUK families.

Although this year’s Conference cannot take place in person, the benefit of a Conference on an online platform enables even more global members of the Niemann-Pick community to attend- they do say every cloud has a silver lining! This year we have over FIFTY speakers and we believe our upcoming Conference will be one of our most informative events to date, it is certainly not a year to miss out…

If you are wanting to attend the 2020 Digital Annual Conference & Interactive Workshop and have not yet registered, fill out the quick and easy form via the link here and join our countdown!

If you have any issues with the form or further questions regarding this year’s event please don’t hesitate to contact us by email at: or by phone on: 0191 415 06 93 and we will do all we can to resolve the problem.