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BOOK NOW: NPUK Annual Family Conference 2019

Posted: 05.07.19

Our Annual Family Conference is the largest event in the NPUK calendar, bringing together affected individuals, families, health and research professionals under one roof.

This year we will return to Wyboston Lakes, Bedfordshire, over the weekend of 20th-22nd September 2019, to celebrate our 26th Conference! Wyboston Lakes is one of our favourite locations, with many memories made over the years, and we look forward to welcoming friends old and new, those newly diagnosed, living with Niemann-Pick or those that have experienced bereavement. This year’s Conference will once again offer the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick disease type C, plus related care issues, breakout sessions and workshops. You won’t want to miss this!

You can reserve your place in the following ways:

  • Online by using the following form
  • Download the form (Microsoft Word) here, and send to: NPUK, Suite 2 Vermont House, Washington, NE37 2SQ
  • Contact us by email on or by phone at: 0191 415 06 93

Thanks to the generosity of our grant funders and sponsors, NPUK is able to offer financial support to families living with NPD to attend this event.  Funding is limited and awarded on a first-come first-served basis. All applications will be treated in confidence.

If you would like further information on the Annual Family Conference & Interactive Workshop please contact NPUK directly by email at:, or by phone on: 0191 415 0693.