You’ll find an extensive list of organisations and services over at the ‘Useful Resources and Links’ section of this site…as the name suggests they can be rather handy, and may be of great assistance to you!
But please remember: we want this site to be a place where information is easily accessible, and also understandable – so if that is ever not the case, don’t hesitate to get in touch with us so that we can talk you through anything complicated. We will do everything in our power to help you.
We are always just a phone call (0191 415 0693) or email (firstname.lastname@example.org) away. So you needn’t ever feel lost or disillusioned as you always have a friend in NPUK.
(Keeping a record of the people who help you can make it easier to get support when you need it. Try to keep a list of their contact details handy – or get in touch with us and we will provide you with all we have!)
We are pleased to share the full programme for this year's Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases, which will be the very first digital Conference we have held. Despite this we are sure it will be an informative, supportive, and entertaining weekend for all of the friends and families within our community...Read more