Every year we hold an Annual Family Conference which offers you the opportunity to hear the latest developments from around the world, with presentations by experts in the field of Niemann-Pick diseases providing an overview of the latest information regarding research, therapies and related care issues, plus breakout sessions and workshops tailored to your needs. It also provides an opportunity to network with other families, friends and professionals from around the world – here is just a small glimpse into the atmosphere that makes it so special:
The NPUK Annual Family Conference & Interactive Workshop is taking place this year on 4th-6th April 2025 at our home away from home, Wyboston Lakes Bedfordshire! As ever the program features updates from UK and international speakers on clinical trials, basic science research, and practical care issues, allowing for the sharing of knowledge and information on a global scale.
We hope you can join us on 4th-6th April 2025 at Wyboston Lakes, Bedfordshire, a location with many fond memories for us. The event is a little later than in past years which will allow our team more time to prepare and also, we hope, more time for attendees to make arrangements.
You can now register (as a family delegate) at the link here.
Professional delegates can register here.
03.04.24
Jackson Pountney, a PhD student at Aston University in Birmingham, needs your help. Jackson is undertaking a research project that will help us to better understand the impact of NPC on quality of life. This important work will help to advance understanding of NPC and support access to treatments in the UK and beyond...
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