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Charity Support – COVID-19

For families with disabled children.

Contact have some useful information and links for advice to help families with disabled children navigate through the confusion about the virus and its impact on them. They have collected it together in one place on their website to make it easy to find.

Visit the Contact site here.

Support for sick children.

Wellchild have a wealth of information and tips on their blog to help children during the coronavirus, including ten ways to keep my child with complex needs safe and seven rules for managing carers at home.

Visit their blog here.

Great Ormond Street Hospital for Children.

This information hub has brought together useful information from GOSH and their latest news in one place. It includes speciality information sheets from each of their departments as well as FAQs related to children and young people who are sick and their families.

Visit information hub here.

Latest news

05.01.21

Cyclo Therapeutics Announces Positive Efficacy Data from Extension Protocol with Trappsol® Cyclo™ in Patients with Niemann-Pick Disease Type C

Home-based intravenous infusions of Trappsol® Cyclo™ for up to one year show improvement in disease features or disease stabilization...

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05.01.21

NPUK 2020 Support Fund

In recognition that many in our community are being impacted by the events of 2020, Trustees of NPUK and The Hollie Foundation, in recognition of their shared goals, have designated funds to create a new grant scheme for patients and families. The aim of this fund is to assist those experiencing hardship or unexpected expense, which threatens to impact their physical or mental well-being...

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