Coronavirus (COVID-19) has dominated the news since the outbreak began in Wuhan, China, at the end of December 2019. This virus has been affecting people around the world, including the UK, and has changed how we live and work dramatically. Naturally this has been a source of concern for our community and many others, including specific groups of patients who may be more at risk, including those affected by Niemann-Pick disease.
During the first and second lockdown we worked hard to develop the means in which to provide key information to our community, through the use of this page and our social media, as well as content which kept up the channels of communication as well as our spirits (through the Social Not Distant campaign). Unfortunately UK Prime Minister Boris Johnson announced a third national lockdown across the UK on the 4th January, after another rapid rise in coronavirus cases. These new measures came into effect on Tuesday 5th January and will last for at least the next two months – at this time and beyond we remain dedicated to providing care and support to patients, families, and the wider NPUK Community. Please contact us by phone on: 0191 415 06 93 or by email at: firstname.lastname@example.org if you require further explanation regarding any of the information below, or you have any other issues we may be able to help with. We are here for you!
Public Health England: Coronavirus resources (translated versions; Arabic, Bengali, Gujarati, Polish, Punjabi India, Punjabi Pakistan, Polish, Slovak, Somali, Urdu) – CLICK HERE
Feel free to download and print this poster (click here) which may assist individuals and families who are currently social distancing/self-isolating/shielding.
Data from ongoing Phase 1 extension study shows improvement in disease features or disease stabilization with home-based intravenous infusions of Trappsol® Cyclo™...Read more