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Latest Information – COVID-19

»Latest info for clinically extremely vulnerable adults & children

Coronavirus (COVID-19) has dominated the news since the outbreak began in Wuhan, China, at the end of December 2019. This virus has been affecting people around the world, including the UK, and has changed how we live and work dramatically. Naturally this has been a source of concern for our community and many others, including specific groups of patients who may be more at risk, including those affected by Niemann-Pick diseases.

During the first and second lockdown we worked hard to develop the means in which to provide key information to our community, through the use of this page and our social media, as well as content which kept up the channels of communication as well as our spirits (through the Social Not Distant campaign). Unfortunately UK Prime Minister Boris Johnson announced a third national lockdown across the UK on the 4th January, after another rapid rise in coronavirus cases. These new measures came into effect on Tuesday 5th January and will last for at least the next two months – at this time and beyond we remain dedicated to providing care and support to patients, families, friends, and the wider NPUK Community. Please contact us by phone on: 0191 415 06 93 or by email at: info@npuk.org if you require further explanation regarding any of the information below, or you have any other issues we may be able to help with. We are here for you!

Public Health England: Coronavirus resources (translated versions; Arabic, Bengali, Gujarati, Polish, Punjabi India, Punjabi Pakistan, Polish, Slovak, Somali, Urdu) – CLICK HERE

Feel free to download and print this poster (click here) which may assist individuals, families and friends who are currently social distancing/self-isolating/shielding.

Latest news

03.04.24

Calling all NPC Patients & Families: your help is needed!

Jackson Pountney, a PhD student at Aston University in Birmingham, needs your help. Jackson is undertaking a research project that will help us to better understand the impact of NPC on quality of life. This important work will help to advance understanding of NPC and support access to treatments in the UK and beyond...

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