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Annual Family Conference

Our Annual Family Conference and Interactive Workshop on Niemann-Pick Diseases is the largest event in the NPUK calendar, bringing together affected individuals, families, health and research professionals under one roof.

Each and every year when we come together we leave with more memories to add to the others made over the years, and each time we look forward to welcoming friends old and new, those newly diagnosed, living with Niemann-Pick or those that have experienced bereavement. This year’s Conference will once again offer the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick disease type C, plus related care issues, breakout sessions and workshops. Individuals and families wishing to attend should get in touch with us by email at: or give us a call on: 0191 415 06 93.

The Interactive Workshop on Niemann-Pick Diseases, an event for professional delegates only, takes place on the Friday (the day before the Annual Family Conference begins). Hosted by Professor Fran Platt, University of Oxford, the meeting features clinical and scientific presentations and workshops on relevant topics, including clinical management, research and potential therapies. Clinicians and health professionals wishing to attend, should please contact the NPUK Central Office directly.

We are pleased to announce that registration for our first virtual event, the NPUK Annual Family Conference & Interactive Workshop on Niemann-Pick Disease 2020, is now open. Despite the disappointment we all understandably feel about not being able to hold the meeting in person, we are confident that the programme we have developed will be a worthwhile experience for our community; with the same world-renowned speakers, the same dynamic content, and many of the same opportunities for interaction between families and professionals that we have offered for over 25 years.

LOWRES NPUK Conf27 interactive Programme

If you would like to join us on the 25th-27th September, we would love to welcome you! Simply complete the quick and easy form (click image above), mark the weekend in your calendar, and join the countdown…if you get in quick we will even send you a NPUK goody bag (UK only), so that you can show your support for our dedicated small charity, before, during, and after the digital Conference! Please note, if you have any issues with the form please don’t hesitate to contact us and we will do all we can to resolve the problem.

If you would like further information on the Annual Family Conference & Interactive Workshop please contact NPUK directly by email at:, or by phone on: 0191 415 0693. 

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