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Annual Family Conference

Our Annual Family Conference and Interactive Workshop on Niemann-Pick Diseases is the largest event in the NPUK calendar, bringing together affected individuals, families, friends, health and research professionals under one roof.

Each and every year when we come together we leave with more memories to add to the others made over the years, and each time we look forward to welcoming friends old and new, those newly diagnosed, living with Niemann-Pick or those that have experienced bereavement. This year’s Conference will once again offer the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick disease type C, plus related care issues, breakout sessions and workshops. Individuals, families and friends wishing to attend should get in touch with us by email at: or give us a call on: 0191 415 06 93.

The Interactive Workshop on Niemann-Pick Diseases, an event for professional delegates only, takes place on the Friday (the day before the Annual Family Conference begins). Hosted by Professor Fran Platt, University of Oxford, the meeting features clinical and scientific presentations and workshops on relevant topics, including clinical management, research and potential therapies. Clinicians and health professionals wishing to attend, should please contact the NPUK Central Office directly.

LOWRES NPUK Conf27 interactive Programme

If you would like further information on the Annual Family Conference & Interactive Workshop please contact NPUK directly by email at:, or by phone on: 0191 415 0693. 

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