Each and every year when we come together we leave with more memories to add to the others made over the years, and each time we look forward to welcoming friends old and new, those newly diagnosed, living with Niemann-Pick or those that have experienced bereavement. This year’s Conference will once again offer the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick disease type C, plus related care issues, breakout sessions and workshops. Individuals and families wishing to attend should get in touch with us by email at: info@npuk.org or give us a call on: 0191 415 06 93.
The Interactive Workshop on Niemann-Pick Diseases, an event for professional delegates only, takes place on the Friday (the day before the Annual Family Conference begins). Hosted by Professor Fran Platt, University of Oxford, the meeting features clinical and scientific presentations and workshops on relevant topics, including clinical management, research and potential therapies. Clinicians and health professionals wishing to attend, should please contact the NPUK Central Office directly. Here is just a small glimpse into the magic that is our biggest and best event:
If you would like further information on the Annual Family Conference & Interactive Workshop please contact NPUK directly by email at: info@npuk.org, or by phone on: 0191 415 0693.
23.06.20
With the risk of catching coronavirus steadily decreasing, the UK Government yesterday announced changes to the future of the shielding programme. From 6 July those shielding will be able to meet outdoors, in groups of up to six people from outside their household, with social distancing. If you live alone (or are a lone adult with dependent children under 18), you will be able to form a support bubble with another household. From 1 August, many people will no longer need to shield, and the advice will be that you can visit shops and places of worship, but you should continue to maintain social distancing whenever possible...
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