The awards recognise the outstanding efforts of individuals, organisations, companies, researchers, scientists, media and policy makers to bring about change and improve the lives of the 30 million people in Europe and 300 million people worldwide who are living with a rare disease.
“…taking place in February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives. The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives…”
The finalists are selected by the EURORDIS Board of Directors in October 2020, and after a public vote the winners are presented with their awards at an online ceremony in February as part of Rare Disease Day celebrations. Cast your vote by following the link below (please click the image)
This is such a huge honour for our small charity, as this puts Niemann-Pick disease awareness on one of the biggest rare disease stages in the world! We would very much appreciate if you could take a few moments to vote – many thanks to everyone who has supported us so far, it’s no exaggeration to say we couldn’t have done any of this without you.
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