Thank you for donating!

You can donate using the following services.

How do you want to hear from us?

How do you want to hear from NPUK?

Even if you have previously told us how you would like to hear from us and/or you have supported us for many years, new data protection legislation requires you to provide your explicit consent in order for us to continue to contact you in the ways that are important to you.

Please use this form to tell us your preferences. You can also change your mind at any time – you will find further details about how to do this below. In the future, we will only contact you about the areas of our work you choose via the communication methods you prefer. Please complete all fields.

I would like to receive information about NPUK services, NPUK events, information and updates regarding the work of the Charity, including the NPUK Newsletter, in the following ways:

I would like to interact with the NPUK Care and Support Team, including the Clinical Nurse Specialist, Senior Families Advocate, Project Families Officer or Central Office Team. I give my consent for them to contact me in the following ways:

I would like to receive information and updates regarding research, clinical trials, treatment and care options relevant to Niemann-Pick disease, in the following ways:

I would like to receive information about NPUK Fundraising events and activities in the following ways:

I do not wish to hear from NPUK:

Your details

First name(s)

Surname

Address Line 1

Address Line 2

Address Line 3

Postcode

Country

Telephone - landline (include dialling code)

Telephone - mobile (include dialling code)

What is your connection to NPUK?

Email

If you're under 16

Your age

Date of birth

Parent/guardian contact email

Parent/guardian contact telephone (include dailing code)

Do you have any additional comments?

Your Details Are Safe With Us – Privacy Statement:

We will always store your personal details securely. We will only use them to provide the service(s) that you have requested and communicate with you in the way(s) you have agreed to. Your details may also be used for analysis purposes, to help us provide the best possible service. We will not pass on your details to anyone else and we will only share them if required to do so by law.

Latest news

04.04.20

"Time to Talk" (Virtual Elevenses - Webinar Series)

At this time of social distancing, it has never been more important to stay in touch. Being able to see each other’s faces and to reach out virtually to those we love and miss is essential. This virus may be isolating us but it is also uniting us – more than ever, we are in this together. We are vulnerable together, anxious together, sad together, scared together, and – most importantly - hopeful...

Read more

27.03.20

A message from Orphazyme to the global community of patients, family members and healthcare providers impacted by the corona virus pandemic (COVID-19):

In the days and weeks to come, Orphazyme will continue to communicate openly with patient organizations and clinical trial investigators around the globe to share the latest information regarding our efforts as the situation develops. Meanwhile please utilize attached FAQs to answer questions if any about our trials...

Read more
View all news Subscribe