Both the British Inherited Metabolic Disease Group (BIMDG) and the Royal College of Paediatrics and Child Health (RCPCH) have issued guidance on how clinically extremely vulnerable (CEV) adults and children will be assessed during lockdown.
In addition, guidance for people on the Clinically Extremely Vulnerable (CEV) list in Tier 4 areas has been updated. Currently people on the CEV list in Tier 4 areas are now advised to follow shielding advice.
The shielding advice is the same that has been issued previously – full details can be found here: https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19
No other areas are currently advised to shield – just to follow the general advice specific to their tier. To find out which tier you are in, visit: https://www.gov.uk/find-coronavirus-local-restrictions
Further information and guidance can be found below:
For adults
BIMDG | Guidance for identifying individuals with inherited metabolic disease (IMD) vulnerable to COVID-19 complications (published November 2020)
BIMDG | News page for IMD and Coronavirus (COVID-19) Visit the website >>
BIMDG | COVID-19 resources Visit the website >>
For children
RCPCH | COVID-19 – guidance on clinically extremely vulnerable children and young people
RCPCH | Summary of key current evidence regarding COVID-19 in children and young people
For all
Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19
Visit the Government website >>
We are aware that some individuals have recently received communications from the Department of Health already. Any individual patient who feels they have been put on the clinically extremely vulnerable list in error, or who feels they may have been omitted from this list in error should contact their treating centre for direct advice: https://www.npuk.org/niemann-pick-disease/uk-specialist-centres/
Please look out for updates on our social media channels or contact any member of our Team if you need to speak to us: email info@npuk.org phone: 0191 415 0693
