05.01.21
In recognition that many in our community are being impacted by the events of 2020, Trustees of NPUK and The Hollie Foundation, in recognition of their shared goals, have designated funds to create a new grant scheme for patients and families. The aim of this fund is to assist those experiencing hardship or unexpected expense, which threatens to impact their physical or mental well-being...
Read more28.12.20
21.12.20
Both the British Inherited Metabolic Disease Group (BIMDG) and the Royal College of Paediatrics and Child Health (RCPCH) have issued guidance on how clinically extremely vulnerable (CEV) adults and children will be assessed during lockdown...
Read more18.12.20
We are pleased to be able to share with you the latest issue of NPUK News. This Autumn/Winter 2020 issue is in fact the only physical magazine we have developed this year, due to issues presented by the COVID situation. We have instead provided monthly updates to keep our community as informed as possible during these strange times. An unintended positive is that this bumper 2020 edition serves as a reminder that despite the challenges this year has thrown at us as individuals, families, and as a community, we have much to be proud of and much to celebrate!
Read more10.12.20