20.09.17
There is an opportunity for you to participate in a market research study about Niemann-Pick Type C, conducted by an organization called ApotheCom on behalf of an industry sponsor. The goal of the study is to understand your preferences and concerns regarding the method through which a drug could be administered to manage Niemann-Pick Type C.
Read more20.09.17
We are pleased to inform you about an opportunity to share your story of living with Niemann-Pick Type C (NPC) in a market research study. An independent market research organisation, Magnolia Innovation, is currently conducting research with people, or parents of children, who have NP-C.
Read more18.09.17
The preliminary programme for this year's Annual Family Conference & Interactive Workshop is finally here - we are excited to once again welcome our community to the biggest event in the NPUK calendar!
Read more07.09.17
IntraBio announces plans for a multi-national randomised clinical trial to evaluate IB1000 as a therapeutic intervention for patients with NP-C...
Read more10.07.17
Take on the challenge of a lifetime from 10,000 ft! Enjoy the exhilarating and unforgettable feeling of a skydive - flying through the clouds from over 10, 000 ft at up to 120 mph! Niemann-Pick UK are looking for thrill-seeking fundraisers to take on this once in a lifetime challenge and if you raise enough sponsorship, you can jump for free! You will be strapped to your qualified British Parachute Association tandem instructor who does all the hard work for you, leaving you to enjoy the invigorating feeling of freefalling before gliding to the ground!
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