13.09.18
The NPUK Annual Family Conference & Interactive Workshop is all set for next weekend, where you will once again get the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick type C, plus related care issues, breakout sessions, and workshops...
Read more11.07.18
We are looking forward to this year's NPUK Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases, which will mark a special milestone - the 25th time we are all coming together as a community!
Read more30.05.18
We are happy to announce that the latest edition of NPUK News is here...and, as ever, is full to the brim of information and updates for the NPUK community including; the 'Research Report' by NPUK Trustee Bill Owen, updates from our wonderful Care and Support team (Laura Bell, Elizabeth Davenport, and Steve Neal), a collection of stories from our fantastic fundraisers, news on our upcoming Annual Family Conference & Interactive Workshop, updates from the INPDA International Niemann-Pick Disease Alliance, INPDR International Niemann-Pick Disease Registry, The Hollie Foundation and...well...so much more!
Read more24.04.18
"We are pleased to again conclude a financing with significant insider participation," said N. Scott Fine, CTD Chairman and CEO...
Read more11.04.18
The Dementia Strikes Children Too campaign aims to raise awareness of childhood dementia, drive for better clinical education of this group of diseases, and put in place the systems and tools for earlier diagnosis...
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