This year marks NPUK’s 25th birthday! NPUK was formed by a small group of parents in 1991, and was granted charitable status as an independent charity in 1997. Over the last 25 years we have aimed to make a positive difference to those affected by Niemann-Pick disease every day.
Today, we support over one hundred families affected by Niemann-Pick diseases, plus their extended families and the health and social care professionals involved in caring for them. Through our work, we aim to ensure that each individual affected by, or connected to, this disease, is able to access the best possible care, support and information appropriate to their needs. Throughout this time we’ve seen major developments within the field of Niemann-Pick disease, with advances in technology and increased knowledge and understanding bringing heightened interest and awareness of this group of diseases.
Our Annual Family Conference provides the perfect opportunity to celebrate this amazing milestone with our treasured families and supportive network of health professionals from all over the world. Together, we dream of a positive future.