Thank you for donating!

You can donate using the following services.

INPDA

NPUK is a member of the International Niemann-Pick Disease Alliance (INPDA). The INPDA is a global network of non-profit organisations supporting those affected by Niemann-Pick disease and was formed in 2009. It aims to relieve sickness and distress amongst families affected by Niemann Pick disease worldwide. It does this through sharing expertise, knowledge and skills across the network, providing mutual support between patient groups, improving information and awareness of Niemann-Pick disease and stimulating research.

Find out more at inpda.org.

Members include:

ArgentinaAssociacion Niemann Pick de Argentina

www.npcargentina.org

info@npcargentina.org

 

 

Australia-flagAustralian NPC Disease Foundation

www.npcd.org.au

mandy@npcd.org.au / kellie@npcd.org.au

 

 

Brazil-flagAssociação Niemann Pick Brasil – ANPB

www.niemannpickbrasil.org.br

contato@niemannpickbrasil.org.br

 

 

 

canadaCanadian Chapter of the National Niemann Pick Disease Foundation (CCNNPDF)

www.nnpdf.ca

nnpdf@nnpdf.org

 

 

China-flag中国尼曼匹克关爱中心

China Niemann-Pick  Disease Association

http://chinanpd.org.cn/

chinanpd@sina.cn

 

 

franceVaincre Les Maladies Lysosomales (VML)

scientifique@vml-asso.org

www.vml-asso.org

 

 

 

germanyNiemann Pick Selbsthilfegruppe

www.niemann-pick.de

info@niemann-pick.de

 

 

 

italyAssociazione Italiana Niemann Pick

www.niemannpick.org

info@niemannpick.org

 

 

 

netherlandsVolwassenen, Kinderen en Stofwisselingsziekten (VKS)

www.stofwisselingsziekten.nl

info@stofwisselingsziekten.nl

 

 

2 Norway

NP Foreningen I Norge

siriskollerud@yahoo.com

 

 

 

spainFoundacion Niemann-Pick de Espana (FNP)

www.fnp.es

 

 

 

swissNiemann Pick Suisse

www.npsuisse.ch

contact@npsuisse.ch

 

 

 

 

ukNiemann-Pick UK (NPUK)

www.npuk.org

info@npuk.org

 

 

usaNational Niemann-Pick Disease Foundation (NNPDF)

www.nnpdf.org

nnpdf@nnpdf.org

 

 

Taiwanese Niemann-Pick Group2000px-Flag_of_the_Republic_of_China.svg

Latest news

11.08.19

Questions from the NPC community regarding the suspension of VTS-270 301 in UK and France (Mallinckrodt)

Mallinckrodt answer questions from the NPC community regarding the suspension of VTS-270 301 in UK and France...

Read more

02.08.19

Mallinckrodt: official statement regarding the Study 301 suspension

The following article features a letter regarding the Study 301 Suspension from Sheila Talafous, Director of Advocacy Relations at Mallinckrodt Pharmaceuticals...

Read more
View all news Subscribe