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INPDA

NPUK is a member of the International Niemann-Pick Disease Alliance (INPDA). The INPDA is a global network of non-profit organisations supporting those affected by Niemann-Pick disease and was formed in 2009. It aims to relieve sickness and distress amongst families affected by Niemann Pick disease worldwide. It does this through sharing expertise, knowledge and skills across the network, providing mutual support between patient groups, improving information and awareness of Niemann-Pick disease and stimulating research.

Find out more at inpda.org.

Members include:

ArgentinaAssociacion Niemann Pick de Argentina

www.npcargentina.org

info@npcargentina.org

 

 

Australia-flagAustralian NPC Disease Foundation

www.npcd.org.au

mandy@npcd.org.au / kellie@npcd.org.au

 

 

Brazil-flagAssociação Niemann Pick Brasil – ANPB

www.niemannpickbrasil.org.br

contato@niemannpickbrasil.org.br

 

 

 

canadaCanadian Chapter of the National Niemann Pick Disease Foundation (CCNNPDF)

www.nnpdf.ca

nnpdf@nnpdf.org

 

 

China-flag中国尼曼匹克关爱中心

China Niemann-Pick  Disease Association

http://chinanpd.org.cn/

chinanpd@sina.cn

 

 

franceVaincre Les Maladies Lysosomales (VML)

scientifique@vml-asso.org

www.vml-asso.org

 

 

 

germanyNiemann Pick Selbsthilfegruppe

www.niemann-pick.de

info@niemann-pick.de

 

 

 

italyAssociazione Italiana Niemann Pick

www.niemannpick.org

info@niemannpick.org

 

 

 

netherlandsVolwassenen, Kinderen en Stofwisselingsziekten (VKS)

www.stofwisselingsziekten.nl

info@stofwisselingsziekten.nl

 

 

2 Norway

NP Foreningen I Norge

siriskollerud@yahoo.com

 

 

 

spainFoundacion Niemann-Pick de Espana (FNP)

www.fnp.es

 

 

 

swissNiemann Pick Suisse

www.npsuisse.ch

contact@npsuisse.ch

 

 

 

 

ukNiemann-Pick UK (NPUK)

www.npuk.org

info@npuk.org

 

 

usaNational Niemann-Pick Disease Foundation (NNPDF)

www.nnpdf.org

nnpdf@nnpdf.org

 

 

Taiwanese Niemann-Pick Group2000px-Flag_of_the_Republic_of_China.svg

Latest news

16.09.20

NPUK Annual Family Conference & Interactive Workshop 2020 - FULL PROGRAMME

We are pleased to share the full programme for this year's Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases, which will be the very first digital Conference we have held. Despite this we are sure it will be an informative, supportive, and entertaining weekend for all of the friends and families within our community...

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