NPUK is a member of the International Niemann-Pick Disease Alliance (INPDA). The INPDA is a global network of non-profit organisations supporting those affected by Niemann-Pick disease(s) and was formed in 2009. It aims to relieve sickness and distress amongst families and friends affected by Niemann Pick disease(s) worldwide. It does this through sharing expertise, knowledge and skills across the network, providing mutual support between patient groups, improving information and awareness of Niemann-Pick disease(s) and stimulating research.
Find out more at inpda.org.
Members include:
Associacion Niemann Pick de Argentina
Australian NPC Disease Foundation
mandy@npcd.org.au / kellie@npcd.org.au
Associação Niemann Pick Brasil – ANPB
contato@niemannpickbrasil.org.br
Canadian Chapter of the National Niemann Pick Disease Foundation (CCNNPDF)
中国尼曼匹克关爱中心
China Niemann-Pick Disease Association
Vaincre Les Maladies Lysosomales (VML)
Niemann Pick Selbsthilfegruppe
Associazione Italiana Niemann Pick
Volwassenen, Kinderen en Stofwisselingsziekten (VKS)
NP Foreningen I Norge
Foundacion Niemann-Pick de Espana (FNP)
Niemann Pick Suisse
Niemann-Pick UK (NPUK)
National Niemann-Pick Disease Foundation (NNPDF)
Taiwanese Niemann-Pick Group
03.04.24
Jackson Pountney, a PhD student at Aston University in Birmingham, needs your help. Jackson is undertaking a research project that will help us to better understand the impact of NPC on quality of life. This important work will help to advance understanding of NPC and support access to treatments in the UK and beyond...
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