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PM Society Digital Awards 2020

We are pleased to announce earlier in the year that we were nominated in two categories for this year's prestigious PM Society Digital Awards 2020 for our work on our latest short film, Go Make Memories (Carl Mason, 2019). We have since scooped awards in both categories, a Silver in the Effectiveness: Healthcare Charities & Patient Associations group, and Gold in Craft: Film. Thank you PM Society, we are truly honoured!

Digital Annual Family Conference & Interactive Workshop

Our Digital Annual Family Conference & Interactive Workshop can now be accessed "on-demand" on the WorkCast platform for those wishing to watch and/or re-watch our milestone event online! If you have any issues with accessing the site please do get in touch with us by email at: info@npuk.org or phone on: 0191 415 06 93

Invisible Illnesses (Upcoming Campaign)

We are currently developing an awareness campaign entitled "Invisible Illnesses", which will focus primarily on ASMD Niemann-Pick disease type B, but will be open to all members of the NPUK Community with scope for collaboration with the wider rare disease population too! If you feel you could contribute from this campaign please get in touch with us at: john@npuk.org

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Latest news

21.10.20

Cyclo Therapeutics Phase 3 Pivotal Program Can Begin Enrollment per US FDA

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19.10.20

IntraBio Reports Further Detail on Positive Data from IB1001 Multinational Clinical Trial for the Treatment of Niemann-Pick disease Type C

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2020 Niemann-Pick UK (NPUK). Registered Charity: England and Wales (1144406) / Scotland (SCO45407). Registered as a company limited by guarantee in England and Wales (07775835).

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