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Go Make Memories - Award Winning Short

Our latest short film, Go Make Memories, was developed with help from our community, for our community, to raise awareness of Niemann-Pick disease. Since its release in September 2018, it has went on to scoop a number of awards and film festival and we hope its impact is only just beginning.

You can watch the film in full at our YouTube channel @NPUK, make sure to subscribe so as to never miss an update.

NPUK Annual Family Conference

Our Annual Family Conference & Interactive Workshop is the biggest event in our calendar, bringing together families and friends alongside leading researchers/scientists working in the field of NPD. It is a truly special weekend for every member of the "NPUK Family", and is always much anticipated.

Due to the COVID-19 pandemic we are developing a digital version of the "normal" Conference programme, which we hope will be just as engaging and informative as our usual physical event. Stay tuned for more updates!

Coronavirus Updates: @NiemannPickUK

We are doing everything we can to support our community at this challenging time - details and developments surrounding Coronavirus (COVID-19) change frequently, and we are dedicated to keeping you updated, and safe.

Please regularly check this website (blog/news section), and also our social media channels: Facebook @NiemannPickUK, Twitter @NiemannPickUK, Instagram @niemannpickuk and YouTube @NPUK

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Latest news

23.06.20

Revised Guidance on Shielding (NPUK Statement)

With the risk of catching coronavirus steadily decreasing, the UK Government yesterday announced changes to the future of the shielding programme. From 6 July those shielding will be able to meet outdoors, in groups of up to six people from outside their household, with social distancing. If you live alone (or are a lone adult with dependent children under 18), you will be able to form a support bubble with another household. From 1 August, many people will no longer need to shield, and the advice will be that you can visit shops and places of worship, but you should continue to maintain social distancing whenever possible...

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18.06.20

Can you help to support trainees in inherited metabolic disease and lysosomal storage disorders?

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2020 Niemann-Pick UK (NPUK). Registered Charity: England and Wales (1144406) / Scotland (SCO45407). Registered as a company limited by guarantee in England and Wales (07775835).

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