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Urgent: The Data Protection Law has Changed!

Due to changes in data protection legislation, NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent - in short if you want to continue to receive our service, we need to get your direct permission. More information can be found below in 'Latest News'

NPUK 25th Annual Family Conference & Interactive Workshop

Thank you to everyone who attended September's Annual Family Conference and Interactive Workshop - particularly those working on the Children & Young Person's Activity Programme! We hope everyone had a positive experience, and hope to see you all soon.

New NPUK YouTube content coming soon!

Please subscribe to our YouTube channel @NiemannPickUK to never miss an upload - new content, shot by CineBites' fantastically talented Carl Mason over the Conference weekend is on its way very soon!

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Latest news

24.05.19

CTD Announces Home-Based Dosing of First Patient in US Extension Protocol of Clinical Trial using Intravenous Administration of Trappsol® Cyclo™ for Niemann-Pick Disease Type C

ALACHUA, FL – (Accesswire) – May 23, 2019 – CTD Holdings, Inc. (OTCQB: CTDH), a clinical stage biotechnology company that develops cyclodextrin-based products for the treatment of disease with unmet medical need, today announced its first home-based infusion of its proprietary formulation of hydroxypropyl beta cyclodextrin, Trappsol® Cyclo™, in a formal clinical trial. The trial is “An Open-Label Extension Study of the Long-Term Safety and Efficacy of Intravenous Trappsol® Cyclo™ (HPBCD) in Patients with Niemann-Pick Disease Type C (NPC-1)” (ClinicalTrials.gov NCT03893071) in the United States.

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13.05.19

Professional Delegate Interactive Workshop and Conference Registration Form - 2019

NPUK INTERACTIVE WORKSHOP - REGISTER NOW! For all health professionals, clinicians and pharma reps who want to join us for the Interactive Workshop this form is for you, please register by the 6th September.

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2019 Niemann-Pick UK (NPUK). Registered Charity: England and Wales (1144406) / Scotland (SCO45407). Registered as a company limited by guarantee in England and Wales (07775835).

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