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NPUK Goes Digital!

Due to the ongoing situation surrounding COVID-19 we have, for the safety of our community, decided to "go digital" this year instead of meeting in-person. But don't worry, there will be the same world-renowned speakers, the same dynamic content, and many of the same opportunities for interaction between families and professionals that we have offered for over 25 years.

Want to join us this year for our very first digital Annual Family Conference & Interactive Workshop? Then please make sure you sign up as soon as possible to reserve your place...we'll even throw in an NPUK goody bag (UK based families only)

NPUK Annual Family Conference 2020

The warm interaction between families, friends, and professionals working in the field of Niemann-Pick disease is what makes our Conference so special...and is why for over 25 years our community has looked forward to this event. In response to the ongoing COVID-19 pandemic we have developed a digital/virtual version of our milestone weekend, and have made interaction our main priority.

Make sure you sign up as soon as possible - we are very excited to share this digital experience with you!

NPUK Interactive Workshop 2020

Our Interactive Workshop on Niemann-Pick Disease is the largest dedicated Niemann-Pick related research meeting in Europe, bringing together scientists, health professionals and other incredible individuals advocating on behalf of Niemann-Pick patients. Despite the difficulties surrounding 2020, the Interactive Workshop's programme is looking as informative and engaging as ever, with the potential for even more attendees due to the necessary switch to a digital platform.

Join Us - Sign up!

If you would like to join us on the 25th-27th September, we would love to welcome you! Simply complete the quick and easy form (click Get Involved on the top banner and then click Annual Family Conference), mark the weekend in your calendar, and join the countdown…if you get in quick we will even send you a NPUK goody bag (UK only), so that you can show your support for our small charity throughout the digital experience!

If you have any issues with registering, or have further questions about the Annual Family Conference & Interactive Workshop please get in touch with us by email at: or by phone on: 0191 415 06 93.

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NPUK Annual Family Conference & Interactive Workshop 2020 - FULL PROGRAMME

We are pleased to share the full programme for this year's Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases, which will be the very first digital Conference we have held. Despite this we are sure it will be an informative, supportive, and entertaining weekend for all of the friends and families within our community...

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