Invisible Interviews is a documentary short film series which will follow four families affected by Niemann-Pick disease go give a deeper and more personal insight into some of the issues and challenges highlighted in our short film, Invisible Manners. The films are currently in development, so watch this space!
NPUK Support Fund
The NPUK Support Fund is still in place to help individuals and families within the NPUK Community. The aim of this limited fund is to assist those experiencing hardship or unexpected expense as a result of the Coronavirus pandemic, which threatens to impact their physical or mental well-being. Find out more information at: npuk.org/npuk-2020-support-fund
Celebrating 30 Years!
Last year we celebrated 30 years as an organisation - that's 30 years of developing awareness surrounding this rare but devastating group of genetic conditions…thirty years of pushing for research, clinical trials, and scientific progress…thirty years of care and support for individuals and families affected by Niemann-Pick diseases – thirty years of you, the NPUK Family!
Register for the NPUK Annual Family Conference!
We look forward to welcoming patients, families, friends, and professionals working in the field of Niemann-Pick, as we have proudly done for over 25 years! Learn more about registering for Conference via the Care & Support' section.