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NPUK Short Film: Invisible Manners

We are proud to introduce our latest animated short film Invisible Manners (2021), which has been developed alongside our community with the help of so many kind individuals and organisations! Please take a moment to watch and share on our YouTube channel @NPUK


NPUK Support Fund

The NPUK Support Fund is still in place to help individuals and families within the NPUK Community. The aim of this limited fund is to assist those experiencing hardship or unexpected expense as a result of the Coronavirus pandemic, which threatens to impact their physical or mental well-being. Find out more information at:

NPUK, Annual Family Conference, 30

Celebrating 30 Years!

Last year we celebrated 30 years as an organisation - that's 30 years of developing awareness surrounding this rare but devastating group of genetic conditions…thirty years of pushing for research, clinical trials, and scientific progress…thirty years of care and support for individuals and families affected by Niemann-Pick diseases – thirty years of you, the NPUK Family!

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