Thank you for donating!

You can donate using the following services.

Urgent: The Data Protection Law has Changed!

Due to changes in data protection legislation, NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent - in short if you want to continue to receive our service, we need to get your direct permission. More information can be found below in 'Latest News'

NPUK 25th Annual Family Conference & Interactive Workshop

Thank you to everyone who attended September's Annual Family Conference and Interactive Workshop - particularly those working on the Children & Young Person's Activity Programme! We hope everyone had a positive experience, and hope to see you all soon.

New NPUK YouTube content coming soon!

Please subscribe to our YouTube channel @NiemannPickUK to never miss an upload - new content, shot by CineBites' fantastically talented Carl Mason over the Conference weekend is on its way very soon!

Explore NPUK

View all

Latest news

04.10.18

CTD announces encouraging top-line data from two ongoing clinical trials of Trappsol® Cyclo™ administered intravenously in Niemann Pick Disease Type C (NPC)

CTD announces encouraging top-line data from two ongoing clinical trials of Trappsol® Cyclo™ administered intravenously in Niemann Pick Disease Type C (NPC)

Read more

03.10.18

Orphazyme Reports Encouraging Arimoclomol Clinical Trial Top-line Data in Niemann-Pick Disease Type C (NP-C)

ORPHAZYME REPORTS ENCOURAGING ARIMOCLOMOL CLINICAL TRIAL TOP-LINE DATA IN NIEMANN-PICK DISEASE TYPE C (NPC)...

Read more
View all news Subscribe