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Coronavirus (COVID-19) Care Plan

Although relatively small numbers of people in the UK have been affected by COVID-19, the number is growing and likely to rise further. We know that there are groups who may be more at risk, including those affected by Niemann-Pick.

Being prepared can be a good way to ease your mind. Reach out to us if you feel stressed, anxious, or have any questions. You can get in touch with NPUK by email: or call: 0191 415 06 93

Prevention of Coronavirus (COVID-19)

Make sure you, and the people around you, follow good respiratory hygiene. This means covering your mouth and nose with your bent elbow or tissue when you cough or sneeze. Then dispose of the used tissue immediately.

Wash your hands frequently, and thoroughly with an alcohol-based hand rub or wash them with soap and water. This kills viruses that may be on your hands, reducing risk

Coronavirus Updates: @NiemannPickUK

Details and developments surrounding Coronavirus (COVID-19) change frequently, and we are dedicated to keeping our community up to date with any and all appropriate news.

Please regularly check this website (blog/news section), and also our social media channels: Facebook @NiemannPickUK, Twitter @NiemannPickUK, Instagram @niemannpickuk and YouTube @NPUK

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Latest news


"Time to Talk" (Virtual Elevenses - Webinar Series)

At this time of social distancing, it has never been more important to stay in touch. Being able to see each other’s faces and to reach out virtually to those we love and miss is essential. This virus may be isolating us but it is also uniting us – more than ever, we are in this together. We are vulnerable together, anxious together, sad together, scared together, and – most importantly - hopeful...

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A message from Orphazyme to the global community of patients, family members and healthcare providers impacted by the corona virus pandemic (COVID-19):

In the days and weeks to come, Orphazyme will continue to communicate openly with patient organizations and clinical trial investigators around the globe to share the latest information regarding our efforts as the situation develops. Meanwhile please utilize attached FAQs to answer questions if any about our trials...

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