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Urgent: The Data Protection Law has Changed!

Due to changes in data protection legislation, NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent - in short if you want to continue to receive our service, we need to get your direct permission. More information can be found below in 'Latest News'

NPUK 25th Annual Family Conference & Interactive Workshop (21st-23rd September)

For more info email: info@npuk.org, or phone: 0191 415 0693.

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11.07.18

Are you looking forward to the NPUK Annual Family Conference?

We are looking forward to this year's NPUK Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases, which will mark a special milestone - the 25th time we are all coming together as a community!

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30.05.18

NPUK News: Summer 2018

We are happy to announce that the latest edition of NPUK News is here...and, as ever, is full to the brim of information and updates for the NPUK community including; the 'Research Report' by NPUK Trustee Bill Owen, updates from our wonderful Care and Support team (Laura Bell, Elizabeth Davenport, and Steve Neal), a collection of stories from our fantastic fundraisers, news on our upcoming Annual Family Conference & Interactive Workshop, updates from the INPDA International Niemann-Pick Disease Alliance, INPDR International Niemann-Pick Disease Registry, The Hollie Foundation and...well...so much more!

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