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#GoMakeMemories #ShortFilm #NPUK

Go Make Memories is an upcoming NPUK produced short film which centres on a young family and the impact of a Niemann-Pick diagnosis. It will use a mixture of both animation and live-action to better express the effects of this devastating disease on both the individual and the family - but also that there is positivity and hope amongst even the darkest moments...

Director/Producer: Carl Mason & Executive Producer: John Lee Taggart

Animation by James Richardson

Talented animator James Richardson will handle the animation sections of the film, and will provide the expertise needed to take the project to the next level. Go Make Memories is different to any other awareness short you may have watched in the past, allowing for us to better display the progression of Niemann-Pick disease type C...

Go Make Memories will première on the 21st September

We are pleased to announce that the NPUK produced short film Go Make Memories will première in front of the NPUK Community at this year's Annual Family Conference & Interactive Workshop on Niemann-Pick Disease(s), which will be held at Wyboston Lakes Bedfordshire...

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13.09.19

CTD Holdings Announces FDA Approval of US Expanded Access Treatment Program in Niemann-Pick Disease Type C

ALACHUA, FL–(Businesswire)–13 September 2019–CTD Holdings, Inc. (OTCQB: CTDH), a clinical stage biotechnology company that develops cyclodextrin-based products for the treatment of disease with unmet medical need, today announced that the company will provide Trappsol® Cyclo™, its proprietary hydroxypropyl beta cyclodextrin drug, to a pediatric patient diagnosed with Niemann-Pick Disease Type C...

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13.09.19

IntraBio: Clinical Trial IB1001-201: US Recruitment

IB1001-201 is a multinational study that investigates the effects of the novel drug IB1001 (N-Acetyl-LLeucine) for treatment of Niemann-Pick Disease type C (NPC). The trial has previously been accepted by Independent Ethics Committees (IEC), and the UK Medicines and Healthcare products Regulatory Agency (EudraCT: 2018-004431-71), as well as National Regulatory Agencies in Germany, Slovakia, and Spain, and the US Food and Drug Administration (IND 134369)...

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