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Urgent: The Data Protection Law has Changed!

Due to changes in data protection legislation, NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent - in short if you want to continue to receive our service, we need to get your direct permission. More information can be found below in 'Latest News'

NPUK 25th Annual Family Conference & Interactive Workshop

Thank you to everyone who attended September's Annual Family Conference and Interactive Workshop - particularly those working on the Children & Young Person's Activity Programme! We hope everyone had a positive experience, and hope to see you all soon.

New NPUK YouTube content coming soon!

Please subscribe to our YouTube channel @NiemannPickUK to never miss an upload - new content, shot by CineBites' fantastically talented Carl Mason over the Conference weekend is on its way very soon!

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Latest news

30.01.19

Orphazyme reports positive results from full data set of Phase II/III arimoclomol trial in Niemann-Pick disease Type C (NPC)

We are pleased to share the latest update from Orphazyme entitled 'Orphazyme reports positive results from full data set of Phase II/III arimoclomol trial in Niemann-Pick disease Type C (NPC)'.

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11.01.19

CTD Announces Presentation at Upcoming Conference on Lysosomal Storage Diseases

CTD Holdings: Annual conference offers opportunities for academic researchers and industry representatives to exchange information on novel therapeutic interventions...

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