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Research

Alongside providing support and care for those living with or affected by Niemann-Pick disease, NPUK also provides information relating to research. NPUK shares knowledge, expertise and works in partnership and collaboration with other not-for-profit organisations, medical authorities and scientific institutions across the world, in order to facilitate progress towards therapeutic interventions for the Niemann-Pick disease.

Where possible, NPUK also funds appropriate research in order to improve medical and scientific knowledge and promote understanding of the disease. The results are often shared amongst our community of families at the annual family conference we hold every September. It is through this medical research and clinical trials that we will find innovative new ways in which to better manage Niemann-Pick disease.

Research

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Latest news

11.07.18

Are you looking forward to the NPUK Annual Family Conference?

We are looking forward to this year's NPUK Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases, which will mark a special milestone - the 25th time we are all coming together as a community!

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30.05.18

NPUK News: Summer 2018

We are happy to announce that the latest edition of NPUK News is here...and, as ever, is full to the brim of information and updates for the NPUK community including; the 'Research Report' by NPUK Trustee Bill Owen, updates from our wonderful Care and Support team (Laura Bell, Elizabeth Davenport, and Steve Neal), a collection of stories from our fantastic fundraisers, news on our upcoming Annual Family Conference & Interactive Workshop, updates from the INPDA International Niemann-Pick Disease Alliance, INPDR International Niemann-Pick Disease Registry, The Hollie Foundation and...well...so much more!

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