NPUK shares knowledge, expertise and works in partnership and collaboration with other not-for-profit organisations, medical authorities and scientific institutions across the world, in order to facilitate progress towards therapeutic interventions for Niemann-Pick diseases – we believe it is only through this collaboration that vital work such as this can be expedited.
Where possible, NPUK also funds appropriate research in order to improve medical and scientific knowledge and promote understanding of the diseases. The results are often shared amongst our community of families, friends and health professionals at the Annual Family Conference & Interactive Workshop on Niemann-Pick Diseases which we hold every year where possible/appropriate. It is through this medical research and clinical trials that we will find innovative new ways in which to better manage Niemann-Pick diseases, and provide hope for our community.
