Niemann-Pick UK (NPUK) is a small charity with one very simple aim, to make a positive difference to the lives of those affected by Niemann-Pick diseases. To achieve this we strive to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies and treatments.

We are an organisation with less than five hundred members, with the work we do is funded entirely through fundraising activities and successful grant applications. Our sustained strength, therefore, comes from the dedication of our much valued families, members, benefactors and volunteers who work with tremendous effort and loyalty in support of the charity and our community.

Without these individuals we would not be able to continue the vital support service we offer, so we are incredibly thankful to each and every person who gives their time for NPUK.