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We aim to provide up-to-date, comprehensive and practical information and advice for those affected by Niemann-Pick diseases as well as information and resources specifically for health, education and social care professionals. The information we develop covers a broad range of topics to enable you to tailor information for your needs. Please feel free to share any of the resources available. If you have any questions or need further information then please contact us at any time.

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Latest news

08.02.24

2024 Regional Family Days: Save the Dates!

We're pleased to announce this year's Regional Family Days, designed to bring our community together for support and solidarity. Here's the schedule...

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