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Here at NPUK you will regularly find us working with other like-minded organisations, such as those that support other connected rare diseases and other charities who share our main concerns and hopes. We have a track-record of successful collaborations with organisations that operate in line with our focus and commitment to improving the lives of those affected with Niemann-Pick disease and other rare diseases.

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Latest news

11.08.19

Questions from the NPC community regarding the suspension of VTS-270 301 in UK and France (Mallinckrodt)

Mallinckrodt answer questions from the NPC community regarding the suspension of VTS-270 301 in UK and France...

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02.08.19

Mallinckrodt: official statement regarding the Study 301 suspension

The following article features a letter regarding the Study 301 Suspension from Sheila Talafous, Director of Advocacy Relations at Mallinckrodt Pharmaceuticals...

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