Thank you for donating!

You can donate using the following services.

Annual Family Conference

Annual Family Conference

Every year we hold an Annual Family Conference which offers you the opportunity to hear the latest developments from around the world, with presentations by experts in the field of Niemann-Pick diseases providing an overview of the latest information regarding research, therapies and related care issues, plus breakout sessions and workshops tailored to your needs. It also provides an opportunity to network with other families, friends and professionals from around the world – here is just a small glimpse into the atmosphere that makes it so special:

The NPUK Annual Family Conference & Interactive Workshop is taking place this year on 24 to 26 November 2023 at our home away from home, Wyboston Lakes Bedfordshire! As ever the program features updates from UK and international speakers on clinical trials, basic science research, and practical care issues, allowing for the sharing of knowledge and information on a global scale.

We hope you can join us on November 24th-26th at Wyboston Lakes, Bedfordshire, a location with many fond memories for us. The event is a little later than in past years which will allow our team more time to prepare and also, we hope, more time for attendees to make arrangements.

We will release registration details as soon as they are ready, but for now…who’s up for this year? It’s always such a lovely reunion!

Latest news

View all news Subscribe