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Happy 2nd Birthday, Aparito!

Posted: 30.01.17

Niemann-Pick UK and the International Niemann Pick Disease Alliance  would like to congratulate Aparito on celebrating two successful years of working in partnership with patient organisations, hospitals and research institutions across the World!


Over the last two years, Aparito has been busily developing a wearable technology device that aims to monitor patient function and well-being in NP-C. As they celebrate their birthday this week, we would like to send a huge “Congratulations!” to the team to thank them for the important work they are undertaking in support of rare disease patients such as those affected by NP-C. Through their tireless work, Aparito is constantly seeking to develop wearable technology and smart phone apps that aim to improve understanding of rare diseases and encourage better outcomes for patients. They have so far initiated five studies, in four different diseases, across three countries, including a study for Niemann-Pick type C patients here in the UK. The study began in February 2016 and has enrolled patients at both Great Ormond Street Hospital and Central Manchester University Hospitals NHS Foundation Trust.

Use of technology such as this will help to promote a greater understanding of NP-C, reduce hospital testing for patients and provide much needed information to support patient well-being.

Founder of Aparito, Elin Haf-Davies, commented:

“As we approach Rare Disease Day on the 28th of February, we look forward to continuing our work in the rare disease community and to collaborating further in order to make a positive impact to patients and their families.”

We look forward to further collaboration with Aparito in 2017, and in the meantime, wish them a very Happy Birthday! To learn more about Aparito’s approach, please visit: