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NPUK News: Spring 2019

Posted: 07.05.19

We are happy to announce that the latest edition of NPUK News (Spring 2019) is here, full to the brim with everything our community needs – there’s fundraising stories, events news, updates from staff and community members…and so much more! We hope you enjoy reading this newsletter, if you would like to request a hard copy and/or get on our mailing list, please email us at:

View below, and download in full here.

At NPUK we are a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. Our central goals are to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies for NPD.

To learn more about Niemann-Pick disease, please visit: