INPDA

NPUK is a member of the International Niemann-Pick Disease Alliance (INPDA). The INPDA is a global network of non-profit organisations supporting those affected by Niemann-Pick disease and was formed in 2009. It aims to relieve sickness and distress amongst families affected by Niemann Pick disease worldwide. It does this through sharing expertise, knowledge and skills across the network, providing mutual support between patient groups, improving information and awareness of Niemann-Pick disease and stimulating research.

Find out more at inpda.org.

Members include:

Associacion Niemann Pick de Argentina

www.npcargentina.org

info@npcargentina.org

Australian NPC Disease Foundation

www.npcd.org.au

mandy@npcd.org.au / kellie@npcd.org.au

Associação Niemann Pick Brasil – ANPB

www.niemannpickbrasil.org.br

contato@niemannpickbrasil.org.br

Canadian Chapter of the National Niemann Pick Disease Foundation (CCNNPDF)

www.nnpdf.ca

nnpdf@nnpdf.org

中国尼曼匹克关爱中心

China Niemann-Pick  Disease Association

http://chinanpd.org.cn/

chinanpd@sina.cn

Vaincre Les Maladies Lysosomales (VML)

scientifique@vml-asso.org

www.vml-asso.org

Niemann Pick Selbsthilfegruppe

www.niemann-pick.de

info@niemann-pick.de

Associazione Italiana Niemann Pick

www.niemannpick.org

info@niemannpick.org

Volwassenen, Kinderen en Stofwisselingsziekten (VKS)

www.stofwisselingsziekten.nl

info@stofwisselingsziekten.nl

NP Foreningen I Norge

siriskollerud@yahoo.com

Foundacion Niemann-Pick de Espana (FNP)

www.fnp.es

Niemann Pick Suisse

www.npsuisse.ch

contact@npsuisse.ch

Niemann-Pick UK (NPUK)

www.npuk.org

info@npuk.org

National Niemann-Pick Disease Foundation (NNPDF)

www.nnpdf.org

nnpdf@nnpdf.org

Taiwanese Niemann-Pick Group