This brochure gives an overview of the care and support services NPUK offers.
File size: 4 MB DownloadThe NPUK Fundraising Guide tells you everything you need to know about raising donations for Niemann-Pick UK!
File size: 4 MB DownloadThe work of Dr Tarekegn Geberhiwot, and the many expert professionals involved in creating the INPDR has resulted in 'The Consensus Clinical Management Guidelines for NP-C', which provides an excellent resource for the wider NPD community.
File size: 917 KB Download05.01.21
Home-based intravenous infusions of Trappsol® Cyclo™ for up to one year show improvement in disease features or disease stabilization...
Read more05.01.21
In recognition that many in our community are being impacted by the events of 2020, Trustees of NPUK and The Hollie Foundation, in recognition of their shared goals, have designated funds to create a new grant scheme for patients and families. The aim of this fund is to assist those experiencing hardship or unexpected expense, which threatens to impact their physical or mental well-being...
Read more