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Annual Family Conference & Interactive Workshop

Our Annual Family Conference and Interactive Workshop on Niemann-Pick Diseases is the largest event in the NPUK calendar, bringing together affected individuals, families, health and research professionals under one roof.

This year we will return to Wyboston Lakes, Bedfordshire, over the weekend of 21st-23rd September 2018, to celebrate our 25th Conference! Wyboston Lakes is one of our favourite locations, with many memories made over the years, and we look forward to welcoming friends old and new, those newly diagnosed, living with Niemann-Pick or those that have experienced bereavement. This year’s Conference will once again offer the opportunity to hear the latest developments regarding therapies and clinical trials for ASMD Niemann-Pick disease types A and B, and Niemann-Pick disease type C, plus related care issues, breakout sessions and workshops. You can view the programme in full, here.

The Interactive Workshop on Niemann-Pick Diseases, an event for professional delegates only, will take place on Friday 21st September. Hosted by Professor Fran Platt, University of Oxford, the meeting will feature clinical and scientific presentations and workshops on relevant topics, including clinical management, research and potential therapies – you can view the Interactive Workshop programme, here.

This special weekend is about sharing information, meeting new people and getting together with friends! For just a small glimpse into what the weekend is about, have a little look at the clip below:

If you would like to join us this year please fill out our online form(s): family delegates click here, professional delegates click here. For further information please contact NPUK by email at:, or by phone on: 0191 415 0693. 

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