Craig Mathieson’s Annual NPUK Golf Day

Every year, a group of golfers gather for a day filled with swings, smiles, and a shared purpose that goes beyond the fairways. The Annual Niemann-Pick UK (NPUK) Golf Day, organised by Craig Mathieson, is more than just a sporting event—it’s a heartfelt tribute to his niece, Lucy Mathieson, and a vital fundraising effort for those affected by Niemann-Pick disease. This blog post explores Craig’s story, the origins of this inspiring event, and why he continues to make it happen.

Craig Mathieson’s journey with the NPUK Golf Day began with a deeply personal tragedy. His niece, Lucy Mathieson, was diagnosed with Niemann-Pick disease type C (NPC), a rare and devastating genetic disorder that affects the body’s ability to metabolise cholesterol and other lipids, leading to progressive neurological and physical decline. Lucy’s diagnosis was a shattering moment for the Mathieson family, made even more painful by the heartbreaking loss of her two siblings, who were also diagnosed with NPC and passed away shortly after birth. Lucy fought bravely but sadly lost her battle with the disease.

In the face of such grief, Craig channelled his love for Lucy and his determination to make a difference into action. He founded the NPUK Golf Day as a way to honour Lucy’s memory and support Niemann-Pick UK, a charity that had been a lifeline for his family during their darkest times. NPUK provides essential support, resources, and advocacy for families affected by Niemann-Pick diseases, and Craig’s event has become a cornerstone of their fundraising efforts.

The Annual NPUK Golf Day is a celebration of community, resilience, and hope. Held annually, the event brings together golfers, volunteers, and supporters for a day of friendly competition and camaraderie. What began as a small gathering has grown into a significant fundraiser, drawing people together to make a meaningful impact for those affected by Niemann-Pick disease.

Craig’s organisational skills and passion shine through in every detail of the event. From securing sponsorships to coordinating players and ensuring a lively atmosphere, he pours his heart into making the day unforgettable. The Golf Day isn’t just about raising funds—it’s about building a community united in the fight against Niemann-Pick disease. For Craig, it’s a way to keep Lucy’s legacy alive while supporting families who face the same challenges his family endured.

Craig’s dedication to the NPUK Golf Day stems from a profound sense of purpose. The loss of Lucy and her siblings left a lasting impact, but it also sparked a fire in Craig to create positive change. As Toni, a member of the Mathieson family, shared in a statement about NPUK’s support, “We will never forget how we felt the day Lucy was diagnosed… NPUK were there with us throughout our journey, and their support and friendship were invaluable.” For Craig, the Golf Day is a way to give back to the organisation that provided hope and guidance when his family needed it most.

Beyond fundraising, the event raises awareness about Niemann-Pick disease, a condition that remains little-known outside affected families. By bringing people together, Craig ensures that the stories of those living with NPC are heard, fostering understanding and encouraging support for research and care initiatives. His commitment reflects a deep desire to turn personal loss into a force for good, ensuring that no family faces Niemann-Pick disease alone.

Craig Mathieson’s NPUK Golf Day is a testament to the power of love, community, and perseverance. Each year, as golfers take to the course, they carry forward Lucy’s memory and the hope for a brighter future for those affected by Niemann-Pick disease. Through his tireless efforts, Craig has not only raised vital funds but also built a community that stands together in solidarity. The NPUK Golf Day is more than an event—it’s a legacy of compassion, driven by one man’s unwavering commitment to making a difference.