You’ll find an extensive list of organisations and services over at the ‘Useful Resources and Links’ section of this site…as the name suggests they can be rather handy, and may be of great assistance to you!
But please remember: we want this site to be a place where information is easily accessible, and also understandable – so if that is ever not the case, don’t hesitate to get in touch with us so that we can talk you through anything complicated. We will do everything in our power to help you.
We are always just a phone call (0191 415 0693) or email (firstname.lastname@example.org) away. So you needn’t ever feel lost or disillusioned as you always have a friend in NPUK.
(Keeping a record of the people who help you can make it easier to get support when you need it. Try to keep a list of their contact details handy – or get in touch with us and we will provide you with all we have!)
At this time of social distancing, it has never been more important to stay in touch. Being able to see each other’s faces and to reach out virtually to those we love and miss is essential. This virus may be isolating us but it is also uniting us – more than ever, we are in this together. We are vulnerable together, anxious together, sad together, scared together, and – most importantly - hopeful...Read more
In the days and weeks to come, Orphazyme will continue to communicate openly with patient organizations and clinical trial investigators around the globe to share the latest information regarding our efforts as the situation develops. Meanwhile please utilize attached FAQs to answer questions if any about our trials...Read more