You’ll find a comprehensive list of organisations and services in the ‘Useful Resources and Links’ section of this site. As the name suggests, these can be incredibly helpful and may provide the support and guidance you need.
However, we understand that navigating this information can sometimes feel overwhelming. That’s why we aim to make this site as accessible and easy to understand as possible. If anything is unclear, don’t hesitate to reach out—we’re always here to help. Whether it’s explaining something complex or answering your questions, we’ll do everything in our power to assist you.
Here’s how we can support you:
We’re always just a phone call away at 0191 415 0693 or an email away at info@npuk.org. You are never alone—NPUK is here for you, every step of the way.
(Tip: Keeping a record of the professionals and services who assist you can make it easier to access support when you need it. Keep their contact details handy—or get in touch with us, and we’ll provide all the information we can to help.)
NPUK provides unique care and support services to families and friends affected by Niemann-Pick diseases…
Being diagnosed with Niemann-Pick disease (ASMD or NPC), whether it’s you, your child, or a loved one, can have a profound impact on your entire family…
Whether you’re looking for support, connection, or simply a chance to meet others in the Niemann-Pick community, there’s something for everyone.