Our primary focus is to provide tailored care and support services to families and friends affected by Niemann-Pick disease (ASMD or NPC). Founded in 1991 as a parent support group of ten families, we have grown over the past 30 years and remain more committed than ever to our community.
Since our inception, we have continuously enhanced our services to better meet the needs of those we serve. Many of our team members have personal experience with Niemann-Pick diseases, giving us a deep understanding of the challenges you may face and the support you may require.
Our dedicated Care and Support team, led by Families Officer Louise Metcalfe, works tirelessly to ensure our community feels well supported.
Join us in raising vital funds to support our work. Whether through sponsored events, community drives, or online campaigns, your fundraising efforts help us provide essential services and fund research into Niemann-Pick diseases.
Get involved by volunteering, spreading awareness, or organising local events. Every action counts in supporting our mission to improve the lives of those affected by Niemann-Pick diseases.
We offer a range of support services, including access to our Families Officer, peer support groups, and connections to medical professionals specialising in Niemann-Pick diseases. We’re here to help you navigate the challenges of living with or supporting someone with the condition.
Our NPUK Heroes are individuals who go above and beyond to support our community, whether through fundraising, advocacy, or sharing their stories. Celebrate their contributions and find out how you can become a hero for Niemann-Pick.
Your donations help us continue providing vital services, support research, and raise awareness about Niemann-Pick diseases. Every contribution, no matter the size, makes a difference. You can donate towards our Charity by using Wonderful, an easy and convenient donation platform.