Dan’s Story
“As the co-founder of the Cure & Action for Tay-Sachs (CATS) Foundation, another rare disease patient advocacy group…”
“As the co-founder of the Cure & Action for Tay-Sachs (CATS) Foundation, another rare disease patient advocacy group…”
“I have a very personal link to the charity due to my diagnosis with the rare condition Niemann-Pick Disease type C…”
“I’m parent of a child who has personally experienced first hand the profound impact of living with Niemann-Pick Diseases…”