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Without people like you getting involved as a volunteer, fundraiser, or anything in between - we wouldn't be able to provide the care and support that we provide to families affected by Niemann-Pick disease! There are numerous opportunities available when it comes to helping us - the only limit is your imagination; there's everything from taking part in our fun days as a member of our passionate volunteer team, setting up fundraisers, or drumming up interest and donations through creative sponsored events. By working together we can make a real difference to the lives of those people affected by Niemann-Pick disease. Please contact us for more information on how you can join us, by email at: info@npuk.org or by phone on: 0191 415 06 93.

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Latest news

11.01.19

CTD Announces Presentation at Upcoming Conference on Lysosomal Storage Diseases

CTD Holdings: Annual conference offers opportunities for academic researchers and industry representatives to exchange information on novel therapeutic interventions...

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08.01.19

Sanofi Genzyme: ASCEND and ASCEND-Peds Studies Complete Enrollment

Sanofi Genzyme’s Global Project Team would like to announce that our pivotal registration study (ASCEND Study) for adult patients with chronic, systemic acid sphingomyelinase deficiency (ASMD) Types B and A/B (or intermediate type) and our pediatric study (ASCEND-Peds) also treating Type B and A/B ASMD pediatric patients have successfully completed enrollment for the targeted number of patients for each of these trials...

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