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Without people like you getting involved as a volunteer, fundraiser, or anything in between - we wouldn't be able to provide the care and support that we provide to families affected by Niemann-Pick disease! There are numerous opportunities available when it comes to helping us - the only limit is your imagination; there's everything from taking part in our fun days as a member of our passionate volunteer team, setting up fundraisers, or drumming up interest and donations through creative sponsored events. By working together we can make a real difference to the lives of those people affected by Niemann-Pick disease. Please contact us for more information on how you can join us, by email at: info@npuk.org or by phone on: 0191 415 06 93.

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Latest news

16.11.18

NPUK News: Autumn 2018

We are happy to announce that the latest issue of NPUK News (Autumn 2018) is now available. This time around it is a bumper edition featuring everything from the Annual Family Conference to BBC Children in Need, with guest articles from Shona Beveridge, Jenny Charman, and Dave Smith...and so much more!

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07.11.18

Mallinckrodt: VTS-270 Phase 2b.3 Data Announcement

The following letter from Mallinckrodt's Sheila Talafous, Director, Advocacy Relations and Derek Naten, Senior Director, Government Relations & Advocacy refers to the VTS-270 Phase 2b.3, as well as expanded access and compassionate use programs.

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