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Without people like you getting involved as a volunteer, fundraiser, or anything in between - we wouldn't be able to provide the care and support that we provide to families affected by Niemann-Pick disease! There are numerous opportunities available when it comes to helping us - the only limit is your imagination; there's everything from taking part in our fun days as a member of our passionate volunteer team, setting up fundraisers, or drumming up interest and donations through creative sponsored events. By working together we can make a real difference to the lives of those people affected by Niemann-Pick disease. Please contact us for more information on how you can join us, by email at: info@npuk.org or by phone on: 0191 415 06 93.

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Latest news

05.01.21

Cyclo Therapeutics Announces Positive Efficacy Data from Extension Protocol with Trappsol® Cyclo™ in Patients with Niemann-Pick Disease Type C

Home-based intravenous infusions of Trappsol® Cyclo™ for up to one year show improvement in disease features or disease stabilization...

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05.01.21

NPUK 2020 Support Fund

In recognition that many in our community are being impacted by the events of 2020, Trustees of NPUK and The Hollie Foundation, in recognition of their shared goals, have designated funds to create a new grant scheme for patients and families. The aim of this fund is to assist those experiencing hardship or unexpected expense, which threatens to impact their physical or mental well-being...

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