Niemann-Pick UK (NPUK) is a small charity with a big mission: to transform the lives of those affected by Niemann-Pick diseases. We work tirelessly to raise awareness, provide practical and emotional support, offer expert advice, and fund research into life-changing treatments. As a tight-knit community of fewer than 500 members, we rely entirely on fundraising, grants, and the incredible dedication of our volunteers to keep our vital services running.
Our volunteers are the heartbeat of NPUK. From families and members to benefactors and supporters, their passion and commitment make our work possible. Whether it’s helping at events, sharing skills, or advocating for our cause, every moment you give strengthens our community and brings hope to those living with Niemann-Pick diseases. We are deeply grateful for every individual who joins us in this mission.
Volunteering with NPUK is a chance to make a real difference. By contributing your time, energy, or expertise, you’ll help families feel less isolated, support groundbreaking research, and raise awareness of this rare condition. You’ll also join a warm, welcoming community united by a shared purpose. Whether you can spare a few hours or commit to a longer role, your efforts will have a lasting impact.
So, how can you get involved? Well there are many ways to volunteer with NPUK, and we’d love to find the perfect role for you.
Below are some opportunities to explore…
Help us spread the word and raise vital funds by supporting our events, such as charity runs, coffee mornings, or awareness campaigns. You could assist with planning, set up stalls, engage with attendees, or promote our initiatives online. Your enthusiasm will inspire others to get involved and make every event a success.
Are you passionate about leadership and strategic planning? Consider joining our Board of Trustees. As a Trustee, you’ll help shape the future of NPUK, oversee our operations, and ensure we continue to meet our goals. This rewarding role is ideal for those with experience in governance, finance, or charity management who want to make a lasting impact.
Do you have a talent to share? Whether it’s graphic design, social media, writing, fundraising, or event coordination, your skills can help us grow and thrive. We’re always looking for creative and practical ways to amplify our message and support our community. Let us know what you bring to the table, and we’ll work with you to put your skills to great use.
Raise awareness in your local area by becoming an NPUK Community Ambassador. Share our mission with schools, businesses, or community groups, distribute leaflets, or organise small fundraising activities. This flexible role is perfect for outgoing individuals who want to champion our cause and connect with others.
Our 24/7 helpline is a lifeline for families affected by Niemann-Pick diseases. Trained volunteers provide emotional support, answer queries, and signpost resources. If you’re a good listener with a compassionate nature, this role could be a powerful way to make a difference.
Email us on info@npuk.org or telephone the Central Office at 0191 415 06 93 to discuss your exciting new chapter!