Niemann-Pick UK (NPUK) is proud to be a member of the International Niemann-Pick Disease Alliance (INPDA), a global network of non-profit organisations dedicated to supporting individuals and families affected by Niemann-Pick diseases. Formed in 2009, the INPDA unites patient groups worldwide to create a stronger, more connected community in the fight against these rare, life-limiting genetic disorders.
The INPDA is a worldwide network of non-profit organisations dedicated to supporting people affected by Niemann-Pick diseases (NPD). It serves as a collaborative platform where patient groups and professionals come together to share knowledge, experiences, and best practices relating to both ASMD (Types A & B) and Niemann-Pick type C (NPC). The INPDA works based on four key pillars:
As a member of the INPDA, NPUK actively contributes to this global effort by:
Since its inception, the INPDA has built a robust network that empowers member organisations to achieve more together than they could alone. By connecting patient groups from diverse regions, the alliance has:
The INPDA’s work depends on the collaboration and dedication of its member organisations, supporters, and the wider community. You can support the alliance’s mission by:
Together, through our partnership with the INPDA, we are working towards a future where Niemann-Pick diseases are better understood, effectively treated, and ultimately cured.
