I joined the NPUK team as Families Officer in January 2020, however I’d previously held the role of NPUK Project Team Leader for four years, overseeing our National Lottery Community Fund project, “Shaping Our Future Together”. My previous work experience has involved providing support, information and guidance to individuals, so feel I perfectly placed and excited to continue in this role. As a Families Officer my role is to offer practical and emotional support to those affected by Niemann-Pick diseases and their families and friends – please do get in touch if there’s anything I can help with!

Phone: 0742 310 6595
Email: louise@npuk.org