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Care and Support

Our main focus, above all else, is to provide unique care and support services to families affected by Niemann-Pick diseases. We originally started out as a parent support group made up of ten families affected by Niemann-Pick disease and 25 years later we stand stronger than ever.

Since 1991 we have continually developed our service so we can better serve those who need it most. Many of the individuals who work within the charity have been directly affected by Niemann-Pick in their personal lives, which adds a unity and shared-understanding of the potential struggles and subsequent help you may need.

Care and Support

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Latest news

25.08.16

CTD Holdings to Host Webinar to Provide Update on Trappsol® Cyclo™ Drug Development Program for Treatment of Niemann-Pick Disease Type C

CTD Holdings, Inc. (OTCQB: CTDH), a clinical stage biotechnology company that develops cyclodextrin-based products for the treatment of disease, today announced that it will host a webinar to provide details of the Company’s recently initiated Phase I clinical trial in the U.S. and Phase I/II clinical trial in the EU, both evaluating CTD’s proprietary formulation of hydroxypropyl beta cyclodextrin, Trappsol® Cyclo™, for the treatment of Niemann-Pick Disease Type C (NPC). NPC is a rare and fatal genetic disease that damages the brain, lung, liver, spleen, and other organs.

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25.08.16

NPUK Annual Family Conference & Interactive Workshop 2017

We are looking forward to our next Annual Family Conference & Interactive Workshop, and we hope you are too! The event is the biggest in the NPUK calendar, and this year will be held 22nd-24th September 2017 at the Mercure Haydock Hotel, Merseyside, UK.

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