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Care and Support

Our main focus, above all else, is to provide unique care and support services to families affected by Niemann-Pick diseases. We originally started out as a parent support group made up of ten families affected by Niemann-Pick disease and 25 years later we stand stronger than ever.

Since 1991 we have continually developed our service so we can better serve those who need it most. Many of the individuals who work within the charity have been directly affected by Niemann-Pick in their personal lives, which adds a unity and shared-understanding of the potential struggles and subsequent help you may need.

Care and Support

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Latest news

16.02.18

IMPORTANT: The Data Protection Law is Changing!

Due to changes in data protection legislation, soon NPUK won’t be able to contact you about any of our services or activities unless you explicitly give your consent.

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01.02.18

NPUK News: Winter 2018 Issue

The NPUK News Winter 2018 Issue is now available, featuring research and clinical trial updates, fundraising news, and much much more...

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