Niemann-Pick UK relies entirely on fundraising and successful grant applications to continue supporting families affected by Niemann-Pick diseases—we receive no statutory funding. That’s why every fundraiser, no matter how big or small, makes a real difference. Whether you’re taking on a personal challenge, organising a community event, or fundraising in memory of a loved one, we are incredibly grateful for your support.
We’re here to help you every step of the way, with advice, resources, and encouragement to make your fundraising a success—however that may look for you. Join #TeamNPUK today and be part of something truly life-changing.
We Need You
Whether it’s running a marathon, hosting a bake sale, or taking on a unique personal challenge, every step you take helps NPUK provide essential resources, advocacy, and hope to families across the UK. Get started today, choose your challenge, and join the fight to make a difference.
Nadia’s Story
“I’m parent of a child who has personally experienced first hand the profound impact of living with Niemann-Pick Diseases…”
